My story is a fairly long and complicated one. At age 18 I was diagnosed with Polly Cystic Ovary Syndrome (PCOS). I had always had irregular periods.
When I was 20 my husband and I managed to conceive our first child with no fertility treatment. When I had him the pains began.
I would constantly feel like I was having contractions at random times, Varying from once a week - once a month with no relation bleeding or ovulation.
At 23 I got pregnant with my second child (again no assistance from fertility nor any contraceptives to prevent children in between the 2 pregnancies).
After I had my second child my periods stopped since I was breast feeding. When I stopped nursing they still did not come back right away.
In January of 2006 I started my first cycle after having had my child in 2004. This cycle I thought was never going to end. By May of 06 I realized that something was wrong. I had been bleeding every day since Jan 20th.
I went to my GYN who put me on birth control pills to help me stop the bleeding. This was some help however it did not stop the bleeding, it only slowed it down from heavy to light.
By September of 06 I started to beg and plead with my GYN to give me a hysterectomy just so I could make the bleeding stop.
I was beginning to lose the ability to maintain my daily functions. The bleeding began to take such a toll on my energy that I was unable to stay awake for more then 10 hours at a time.
After going to my GYN every 3 months for paps and whatever little consulting they were willing to do, my persistence to obtain a hysterectomy was becoming stronger as was the pain.
My GYN finally changed my BCP (Birth Control Pills) in hopes to help stop the bleeding with no luck.
In August of 2008 I had such severe pain that it felt like I was in full blown labor (there is no chance of pregnancy my husband had a vasectomy in 2004).
By September of 2008 I was finally given exploratory surgery to try and diagnose and or rule out a few abnormalities like endometreosus.
The surgery went well they did a Hysteroscopy, laparoscopy and a DNC. However everything came back normal and they found nothing wrong with me, the bleeding continued.
At my follow up I was then informed that there was nothing else that could be done with me. I was referred to mental health for an evaluation and told that there was no way I could get my hysterectomy at my age (28 years old).
Since there was nothing medically wrong with the organ I wanted removed they were going to have to check my mental status.
I got fed up with everything and contacted a PCOS specialist who said it would be a good idea to have a few tests done that require me to be off all medication for 3 months.
At this point (oct. 2008) I called my GYN back and informed them that since the BCP was not working I was going to go off of them.
After going off the pills for only 5 days my bleeding had stopped! I thought I had finally made some progression.
Three days later the pain went down.
Then November, the pain came back 3 days later the bleeding returned for a normal cycle of 5 days then the pain went away 3 days after that. December was much the same.
However January (4th) is when things take a turn for the worse. I started my cycle again this time luckily with out the pain however it lasted for 8 days. Then not even 2 full weeks later I started again (Jan 23rd) and am still bleeding today Feb 7th.
I really do not know what to do at this point my health care provider does not want to give me a referral to see a endocrinologist. I am not even sure if that is the route I really need to go.
I am at a loss.